My Road to Recovery Post-Gardasil

By Kristin Clulow, Newcastle, NSW, Australia

My Recovery Post-Gardasil

My Recovery Post-Gardasil

My name is Kristin Clulow. I am 31 years old and live in Newcastle, Australia. I wrote an article a few years ago regarding my Gardasil experience. As this last post was over three years ago, I would like to take this opportunity to update you in the hope that it may be of assistance to you, or someone who you know who is suffering a similar illness.

In 2008, I received two out of three Gardasil vaccines. Soon after I lost the ability to run, skip, jump, dance, wear heels, and then struggled to walk in flat shoes, and then in a straight line. My writing disappeared; my speech followed. Any cuts and bruises would take months to heal, and would be multiplied by my increasing clumsiness and incoordination. I constantly felt sick, nauseous and suffered ‘brain fog’. The right side of my body had slumped, similar in physical manifestation to a stroke. My whole body would tremor with intention to do even the smallest task.

I was administered eight doses of Intravenous (IV) Methylprednisolone on two separate occasions (three and five doses respectively), which worsened the symptoms. The traits which were primarily limited to my right hand side now spread to the left hand side of my body, and were worsening.

Despite extensive physiotherapy and exercise as well as full-time work, my body continued to deteriorate to the point where in June 2009, my primary Neurologist stated ‘We have missed something’.

I underwent a Positron Emission Tomography (PET) Scan. A PET scan is similar to a Magnetic Resonance Imaging (MRI) Scan, but is more minute in results. The individual is injected with a glucose resin, which highlights parts of the body of concern. In my case, it showed up that my cerebellum had switched off. I was diagnosed with a condition called Acute Disseminated Encephalomyelitis (ADEM), which is an immune mediated disease of the brain, and may appear following a vaccination.

At this point, I was at my worse. I could not walk; I could not write; I could barely speak and could barely eat (as I could not find my mouth to ingest food). My nervous system, my immune system and myelin sheath surrounding my nerves were dissolved. I was given little hope of any improvement.

When faced with a situation such as this, there are two options: fight, or flight. Running away from this was not going to make it better. Fighting was the only chance I had – the harder option, but I do not shy away from challenges.

This one moment in time made me re-evaluate my life – my goals, my values, and the importance of relationships, material possessions, and overall issues. What I’ve realized is that without your health, you are helpless. And I also realized that out of great fear, comes great faith.

I researched neurosciences and neuroplasticity and believed that the brain could repair itself. I gave up full-time work at my doctor’s instructions for two years.

Instead of just concentrating on Gardasil, I returned to University to obtain another degree in Masters of Teaching (Secondary). Every day, I undertook extensive physiotherapy, speech therapy, occupational therapy and hydrotherapy, as well as hours of study, exercise and countless other activities.

Every 28 days, I was admitted to hospital to receive IV Immunoglobulin (IVIG). This was warranted due to my diagnosis of ADEM.

IVIG is a drug in limited quantity– its demand is much higher than stock in supply. CSL, the licensee of Gardasil in Australia refused to honor my claim on three separate occasions for this drug, although having access to it.

Ultimately, my family purchased this from a different supplier, had it flown to Newcastle and administered to me. I have no doubt that this played a huge role in saving my life. IVIG is wonderful medication. I suffered major headaches, but saw improvements in my motor skills.

There are issues however:

  1. It is not cheap. A lot of females suffering Gardasil cannot afford to have a PET scan or obtain this highly sought after drug. Nor can they get access to the top medical professionals that I had working on my case. Unfortunately, money and contacts go a long way in a case of this caliber.
  2. IVIG will not work for everyone, and;
  3. For a cheaper option, I would try homeopathy.

I class myself as a guinea pig for Gardasil. I have tried both Eastern and Western remedies. Some have worked, many have not worked.

For me, IVIG worked in western medicine. After trying just about everything in eastern medicine, I would recommend homeopathy in the first instance.

Approximately six months ago, I received word from another Gardasil Girl that there was a doctor, Dr. Isaac Golden, in Melbourne, Australia that was ‘fixing’ girls affected by Gardasil with his own personal remedy. This remedy does not reverse the effects of Gardasil. Instead, it helps the body in breaking down the barrier that Gardasil has created, allowing the body to recover itself.

At the time of receiving this advice, I had reached a plateau. Regardless of how much exercise I did, I could only see limited improvement, so I went to see Dr. Golden.

What he administers is completely natural. He is a homeopath, specializing in vaccination injuries. For me, I started on dose #1. All it took was placing two small tablets under the tongue every few days and allowing them to dissolve. I report back any progress and/or side effects to Dr. Golden every few weeks, and then it is decided if my dosage should be increased. At present, I am on #6. The price of these tablets is small and affordable.

Since beginning to take these tablets, I have noticed a decrease in my tremors, an improvement in my walking (I am starting to wear heels again), and the tone and speed of my voice has improved.

The side effects are that I get pain in my head on occasions. This pain is limited to the cerebellum area. I do get tired on occasions, but this could be due to the busy lifestyle that I choose to live.

I am still continuing to take these tablets and plan to do so indefinitely, as I believe they are assisting.

Approximately two months ago, I had a hair mineral analysis test conducted. This required taking a small portion of untreated hair out and sending it to a lab for testing. This test showed up that my body was high in Aluminum (a major ingredient in Gardasil), and that my body was not absorbing the nutrients from food. As such, I have booked in to see a dietician to resolve this issue.

I have heard that many Gardasil Girls suffer from food intolerances. I also suffered from this. I try to eat fresh food, limit processed food, and try and eat as much gluten free, lactose free and sugar free products as possible. I try not to eat takeaway foods, as well as trying to limit artificial colors and preservatives.

If you are having food allergies, I would recommend trying the ‘Elimination diet’. This is a slow process, but affordable, whereby you go back to basics (phase one is rice, chicken, beans and pears etc.) and then you add in different foods. You record your progress and find out which ones you have a reaction to.

This was conducted under the assistance of a dietician who was able to give me advice as I proceeded. I also had a gluten and lactose blood test, which showed that there was a level of intolerance, and also resulted in headaches, nausea, cramping and bloating.

Further, I attend Chiropractic care twice per week. My Chiropractor is a doctor with extensive experience and serves to readjust my spine and stimulate the nervous system and the cerebellum.

I try and attend the gym three to four times per week and undertake over an hour of cardio, weights and stretching. I am now able to interval run, however my right foot still lacks coordination. My strength and tone is improving. I also do additional exercise to challenge my body and brain. In the last few months I have tried surfing, stand up paddle boarding, dancing (many forms), yoga, Pilates – and the list goes on. Although I am not the best, I have shifted my mindset to ‘giving things a go’. Any form of exercise is beneficial and works out different muscles of your body.

As for my hands, my right hand was more affected than my left. Being right handed, I have relied heavily on the use of technology to aid in communication. I practice my handwriting; however still find it quicker and easier to type.

As a teacher, I am very grateful that our school uses electronic whiteboards, which limits the amount of writing. The staff and students are also extremely supportive of my present inability.

I was also a good pianist pre-Gardasil, and this has resulted in me going back to basics. I still know the notes and theory, but I was unable to play due to the tremors in my hands. Thankfully, this is slowly improving due to constant practice of technical work (e.g. scales).

I have suffered insomnia since Gardasil. Some nights I can sleep well, others, I average three to four hours sleep. I still suffer pain, primarily leg pain. For this, I take Panadeine. I try and exhaust my body as much as I can, as this often means I get a better sleep.

My life now is about 85% compared to before – if I had to put a quantitative measure on it. I say this simply because there are still things which I struggle to do – to walk, speak and write.

My friends see me as being completely normal, which is uplifting. I, however, am much harder on myself because I know what I was like before.

I have learned so much from my experiences after Gardasil. The happiness I experience daily because of this, far exceeds any feeling before. If I could change the past, I would not change a thing – as this experience has made me who I am today, and I truly believe that everything happens for a reason.

I trust that this, in some way, can be of assistance to you. Everyone is going to have different symptoms and different things work for different people.

If you have a daughter or a loved one going through this, my advice is this: they need you. They are too tired and too sick to fight for help to make it through. They need support. They need someone to go to doctor’s appointments with them.  When you have brain fog, you do not recall much. Make sure they keep a diary, or have someone who can record everything that happens. I know this is painful, but if you need to refer back to anything, it is easier to track it this way. Have a video/photo database.

This is something that I did not do, and I wish I had. But, I was so sick and tired (and looked terrible!) that I did not want photos being taken. But do it. If this ever escalates, you will need proof.

Listen to advice, try things that you think will work, and always stay positive. Having a bad attitude does not help (and gives you frown lines!).

Lastly, never give up. You will have times when you want to, when it seems pointless, hopeless, unfair etc. I have been there. I have felt all of those emotions – and more. But I am living proof that you can improve and that you can, once again, enjoy a quality of life.

If you would like any more information, I can be contacted via Facebook (Kristin Clulow) or via email: kristinclulow@live.com.au. I am in contact with hundreds of Gardasil girls and families all around the world and can put you in contact with the relevant people. We are all here for each other, and can help you.

Thank you and kind regards,

Kristin Clulow

Comments

  1. maureen says:

    Hello I am the mother of a twelve year old girl. My daughter received the gardasil shot in April 2013 she also at the time got three of her booster shots. When her doctor asked me would I like to give her the shot I said what is it for she stated it’s given in a series of three and it prevents cervical cancer. I told her I wasn’t sure and she stated we give our children shots to prevent them from contracting other diseases this is no different . I agreed. Upon receiving her this shot she passed out. The nurse told me it was more than likely from receiving too many shots. They gave her some apple juice monitored her for fifteen minutes and we were sent on our way, or so we thought as I was paying my co-pay she passed out again in the waiting room. Again, I was told it was because she received too many shots. I said this has never happened before but, maybe they were right. After waiting another fifteen minutes we left no incident. We came home and she was crying saying her arm was killing her and she didn’t feel right.
    I reassured her telling her you just got too many shots relax and you will be fine. Her arm was still very tender for long after but again didn’t think anything of it. She received her second Gardasil shot in November of 2013 . This time she complained about her arm that evening she was running a fever and crying saying I don’t feel right, my stomach hurts, and I feel funny. I called the doctor and they told me to give her Tylenol to bring down her fever. Their response was its a reaction to the shot. I felt something wasn’t right… She was not herself for awhile after that. But their was nothing that was out of the ordinary.
    In April of 2014 my daughter passed out in her classroom. She went to the emergency while their she passed out again. She was admitted and all the tests began. She was extremely sensitive to light, and noise. They diagnosed her with a concussion since she hit her head. Upon further testing they concluded that she passed out because she didn’t eat that morning… Very strange since my daughter had a habit of not eating breakfast every morning like most kids her age sometimes do… After that incident she passed out a week later. We took her again to the emergency from again they drew blood and hooked her but to an EKG because before she passed out the second time she said she couldn’t breathe. The doctor on call recommended we take her to a cardiac heart specialist. We have since taken her her tests are all coming back fine. Yet she complains about pains in her legs she also got this web like thing on her legs. We took pictures of it. As of this writing she is running a fever and is complaining of her throat.
    Is this just the beginning of things to come?
    I have read some of these stories and they are frightening, I really don’t know what to do… Any help would be greatly appreciated.

    • Maureen,

      Very sorry to hear about your daughter.
      I’ll write quick note for you to detox.
      Get glutathione cream and apply. Find somewhere to get Myers Cocktail(IV).
      Those two will help boost her immune system and lift up her basic strength.
      Keep taking those and get Yaeyama Chlorella and Coriander tincture to detox.

      JP victims who recovered used a facility called Enzyme Bath(you can see the photo of it
      http://insidejobjp.blogspot.com.au/2014/05/blog-post_23.html ) but I don’t think it’s available
      where you are(in the West) so detoxing will be either by those above plus chelation = DMSA
      (capsules), DMPS (IV) or Zeolite. You’d need to go see a doctor at a clinic of Integrative Medicine
      for DMSA or DMPS but you can buy zeolite(I buy ZeoForce from iherb.com). However, if your
      daughter’s symptoms are really horrible, you’d better start with milder ones such as coriander
      and chlorella.

      If you have any question, please do not hesitate to ask.
      Detox her, then she’ll get better for sure.
      This information is for everybody.

      Good luck!

      Aus
      HPV is NOT even the cause of cervical cancer. HPVV is a horrible FRAUD!!
      http://aus911truth.blogspot.com/2013/08/stop-fraudulent-hpv-vaccines.html

    • melodierose47 says:

      Dear all damage victims,
      My daughter having the 3rd shot at 13 is now 17. She has been suffering with back pain aka fibromyalgia symptoms and chronic fatigue. Cords in fingers, legs, toes. She has recently developed a painful ganglia between her first and second finger. Two days ago I received a hair analysis report (I wish I had done it sooner). Her cooper level is off the graft chart along with calcium. The high cooper level causes the calcium to be in the soft tissue (outside the bone and teeth) which is causing her pain. Now I’m on the search for a way to detox the cooper or how to balance her system so the excess cooper and the calcium with be eliminated. If you read about high cooper levels in the body it could explain a lot of the symptoms the HPV victims are having. (only a guess) The company I used was getbetternow.com for the hair analysis. The report comes with a full report of results and what to eat and not to eat. After reading the report I say everyone with health concerns should get this done.
      I hope this helps someone.
      Regards.

  2. I just don’t understand why so many people/victims cannot see a real simple fact.
    I mean, they POISONED you, so all you need to do is DETOX!!

    In fact, I wrote an article on my JP blog last year, about a girl who got better about in 3 months after suffering for, I think 2 years! Guess I should write its English version along with another girl that I wrote about only a few days ago, who also got better by detoxing!

    Also, I tried to reach you Kristin via Facebook and sent a mail several times but got no reply. Wonder what happened.
    The thing is, modern medicine doesn’t touch the cause at all but sells you some medicine or treatment which contains poison, only to suppress the symptoms which are actually the signs that your body is fighting back to get rid of the problem!! Therefore, your body would think, “Oh, we have to fight back further more!” and you’ll get messed up.

    If you dare to try internet translation(though I’m not sure about the quality), my last year’s article is here,
    http://insidejobjp.blogspot.com/2013/09/hpv.html

    and a few days old is here,
    http://insidejobjp.blogspot.com/2014/05/blog-post_23.html

  3. I delight in, result in I discovered exactly what I was taking a look for. You have ended my 4 day lengthy hunt! God Bless you man. Have a great day. Bye

  4. That is very attention-grabbing, You are a very skilled blogger. I have joined your feed and sit up for searching for extra of your excellent post. Additionally, I’ve shared your web site in my social networks

    • Hi SHuot,

      Were you talking about this Kristin’s article?
      Or since you say “blogger” did you mean my blog?
      If so, thank you very much! especially sharing the links.

      Gotta write and update more though.. ;o)

  5. NBruton says:

    My family members all the time say that I am wasting my time here at web, but I know I am getting knowledge all the time by reading thes pleasant content.

  6. maria rivera says:

    Hola kristin me hiciste llorar. Tb soy una Victima mas y tengo una edad muy similar a la tuya. Todo esto ha sido una pesadilla y entiendo por lo que has pasado pq he sufrido casi lo mismo que tu. Estas experiencias nos pasan para madurar y valorar las cosas que tenemos y ayudar a los demás eso es lo que me ha mantenido activa y en estado de recuperación aunque no es fácil. Yo les recalco mucho a las chicas la alimentación para que se mejoren en fin gracias por compartir tu caso. Pq lo haré llegar a las demás víctimas. Un abrazo desde colombia

  7. Jo-anne Locke says:

    When my daughter had her first Gardasil in high School the symptoms she had was a stiff neck and her top half of her body went into a spasm. That is how she described it.. Now she is 25 she is suffering migrane headaches

  8. Daniela says:

    HI, I’m also a Gardasil victim, I’m now 28 years old. I’m Colombian but got the the three shots in France while I was studying, in 2008.
    At first I felt very tired and I started to develop a muscular weakness.
    It wasn’t until 2013 that I visited the first doctor. I didn’t wanted to accept I was ill. After two years of seeing several doctors I still have no diagnose. They think I have a limb-girdle muscular dystrophy. They always ignore all other symptom I developed such as being tired all the time, Raynaud’s disease, problems in kidney…
    I”ve been seeing an homeopathic doctor for a year. I recently started with a new therapist who makes a craneo-sacral therapy. I’m feeling much better., in case it’s usefull for anyone.
    I saw in Kristin’s testimony that her homeopathic doctor gave her some pills with a special composition. I would like to know what is it’s composition. I think my homeopathic doctor could make those here in Colombia.
    I’m willing to help other girls here in Colombia who can’t afford this kind of doctors, at least by giving them these treatment.
    I wrote to Kristin but never got an answer. I appreciate if anybody could tell about possible treatments.

  9. Andrea Herlth says:

    Hi Kristin, My daughter had 24 weekly IVIG infusions which unfortunately did not work for her. We are trying more holistic measures now mixed with some western medicine. I am very curious as to what the tablets #1 – #6 are in homeopathic medicine? We just starting seeing an NP now as well…..so far, we have not had any success. My daughter has many similarities to the symptoms you described including the tremors and pain, nausea, headaches, etc. – she also started to get seizures daily since June of this year. I’d appreciate anything you can share that we can bring to her NP. Thank you and so very happy that you are 85%…..that is huge!!!

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