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Post Cervarix Syndrome: Eleanor – Kettering, Northamptonshire, UK

December 21, 2011 By 3 Comments

Story as told by Lisa, Eleanor’s mum

Post Cervarix Syndrome Victim: Eleanor from the UK

Post Cervarix Syndrome?

Eleanor was born a very healthy baby who never really had any major illnesses. When she was 7 months old, she had penicillin for the first time and had an extreme reaction in which she turned blue and stopped breathing.  She has never had penicillin since.   From then on she was always well – a healthy happy young child.  She was an extrovert who had many friends, did gymnastics and won a couple of silver medals in competitions.    She attended cubs and then went on to scouts where she went camping and enjoyed many outdoor activities.  She joinedSt John’scadets and swam forKetteringswimming club.  Her sisters were always jealous of how Eleanor could strike up a conversation and make friends wherever she went due to her bubbly personality.  She would be out most weekends at sleep-overs, going to endless birthday parties or joining in activities with the scouts or St Johns cadets.

Eleanor had her first hospital stay in October 2008, a few days after her first HPV jab.  She had constant pain in her stomach since the injection. When I saw the GP he thought it might be her appendix.  She was in the hospital for a few days for tests but they couldn’t find anything wrong with her.  They said, “She must be a little constipated. It couldn’t be the injection – just a coincidence.”

She came home from hospital and had her second jab in the November.  Over the next few months, she visited the GP on a number of occasions due to still being in pain with her stomach.  They tried tablets for IBS which didn’t work; different tablets for her periods which never completely eased the pain but regulated her cycle.   During this time she went for a check up with her dentist who found that her teeth had started to corrode due to acid reflux.  She had to sleep propped up and take antacids to help with this problem.

After the May 2009 injection she complained how painful the jab had been. We continued to see the GP regarding Ellie having pain when she ate and stomach swelling/bloating after food, making her feel very uncomfortable.

Over this year Ellie was not able to take part in as many activities. She was now only going to scouts as she just felt too tired to do anything else.  She didn’t go out as much but was still managing to attend school, although it was tiring.

In May of 2009, Eleanor had a blood test which showed something wrong with her blood count and I was asked to take her back into the doctors.  The GP who saw her dismissed it saying it just proves she has IBS.  She then saw a different doctor who I requested to take Eleanor on as his patient. Unlike others she had seen, he always believed her, made her feel that her illness wasn’t in her head, and referred her to a consultant at the hospital when needed.

In September 2009, before she got to see the consultant Eleanor fell ill and was unable to keep any food or water down. She went to Key doc (after hours medical service) a couple of times that week due to the pain.  On the second visit to the hospital, she was seen by a nurse practitioner who did not appear to be happy that Eleanor was back.  When the nurse examined her stomach and liver, she was concerned and called for the doctor who admitted her to hospital.   Whilst in the room, the nurse phoned the ward and told them the doctor wanted Ellie to be admitted, but she personally didn’t think she should be as her vital signs where good.  Since I insisted, she was finding out if there was a bed available.

Eleanor stayed in hospital for a week and was put on a drip to alleviate dehydration and give her stomach a rest.  Whilst in hospital she had an ultra sound which showed a cyst on her liver and a blood test that identified something wrong with her pancreas.  The doctors were unsure, but suspected Eleanor had an ulcer. She was referred to another hospital in Leicester to see Mr Green, a specialist.   She was put on a high dose of ranitidine and omeprazole and had to drink lots of milk and eat ice cream.    She had to give a faeces sample to be analysed to see if she had the bacteria in her stomach which causes ulcers.

She saw Mr Green the following week. He said that Kettering had lost the sample so he couldn’t say if she had an ulcer or not. He thought we should wait and see how things developed over the next 6 weeks. If Eleanor was not better, then they would investigate further.

Eleanor got a lot worse over the next couple of weeks and was re-admitted into hospital by her GP as she was still continually being sick and had to carry a sick bowl where ever she went.   She was told to start the ulcer medication even although they had not proved this was the cause of Eleanor’s problems. Since she was not able to take penicillin she couldn’t take anything until the next day when they worked out which tablets she could have – the treatment consisted of 3 different types of antibiotics.  When she took the first dose she doubled over in pain screaming, was rushed to A and E and re-admitted onto the children’s ward.  This was in October of 2009.  They tried different methods of giving her medication, but every time the pain increased. But it was their theory that she had to complete the course.

The hospital staff put her back onto a drip and started giving her ranitidine intravenously, trying different medications to relieve the sickness.   None of them worked and she remained in hospital for 5 weeks continually being sick every time she ate or drank.  One of the doctors asked her if she was making herself sick – was she worried about getting fat?

She didn’t want me to leave her side as she felt the doctors didn’t believe her. One of the nurses took the sick bowl off her and told her it was in her mind and she was to swallow her vomit!  Thankfully not all the doctors or nurses were like that. Some were very good with Eleanor, although when she complained about the pain they were reluctant to give her medication and always asked her if she was really sure she needed it.

After 5 weeks, she started throwing up fresh blood and granules. She saw Mr Chilton on the ward who is an adult gastroenterologist.  He said that it was possible that the HPV jab could have caused her problems but he wanted to rule out other potential sources. He said she needed to stop taking all medication. Then, he would take biopsies from her stomach and bowel to rule out Crohn’s disease.

She had another couple of tests in Kettering, including an ultra sound showing the cyst on her liver was gone.  She had an appointment the following week as an outpatient at Leicester, Mr Green’s clinic. I was advised by the doctors on the ward to continue and see him. She was discharged so that she could attend.  As she was throwing up blood all the way there Mr Green had her admitted.  She was in hospital for over a week having an endoscopy and a pH level test done.  They found her stomach was inflamed, but attributed it to her vomiting. Her ph was also high but again they said it was a consequence of her being sick.  She was discharged and sent back toKetteringcare.  Mr Chilton, after learning that Mr Green was involved with her care, discharged her as she was still a minor and therefore should stay with Mr Green.

By this time, Eleanor had only been able to attend regular school 10.9% of the time. She was receiving no education from the hospital teacher when she in the hospital.  I constantly asked for Hospital and Outreach but the school never sorted it out.  She became distant from her friends and very isolated. She felt frustrated and depressed as she thought no one believed her.

She was re-admitted to hospital in January 2010 for pain and sickness through A and E. The doctors in hospital decided to refer her to Mr Woods, a gynaecologist, who suspected endometriosis.   She had a laparoscopy in May 2010 which showed everything to be normal.  At this point, because they had not found anything, Eleanor became more withdrawn and very down as she felt no one believed her.  She saw Dr Achayria in June. He decided the only other thing Eleanor could have was abdominal migraines and cyclonic vomiting. He put her on medication to stop the symptoms, saying she would grow out of it.

Eleanor’s pain continued and she still struggled to attend school. She was absent more than she was there but would still study when she felt up to it at home.  By the November, Eleanor’s pain was getting worse and she was having bouts of diarrhoea and sickness. Her stomach was continually swelling up and giving her really bad stretch marks.  This really got her down and she was referred to a specialist registrar in Child and Adolescent mental health as the doctors at the hospital felt a lot of the pain she was having was in her head.

Dr Singh felt that there were no mental issues with Eleanor and referred her back to the hospital for more investigations.  Her consultant, Dr Achayria, then referred her back to the adult gastroenterologist, Dr Azam who she saw in December of 2010.

In February she was sent home from school due to what they thought was a panic attack.  Eleanor nearly passed out due to the pain she was in.  She went to the GP who said it was a mechanism that the body shuts down when the pain get so bad. When she felt this coming on she was to sit down. He increased her painkillers.  The following day Eleanor was not feeling good and I phoned key doc after dropping my other daughter off at work.

When I got home I found Eleanor passed out on the bathroom floor.  When she recovered she started passing fresh blood from her bowel.  I took her straight up to key doc and was seen by a nurse who did not know what to do but as Eleanor’s blood pressure was low suggested that I take her to A & E.  She sat for 3 hours in the waiting room in severe pain before being seen by a doctor.  This doctor was just wonderful with Eleanor. He got her admitted straight away and gave her morphine for the pain.  She stayed in for the weekend on a drip and painkillers.

Again we had a problem with one nurse who refused to give her painkillers as she did not consider Eleanor was in much pain because she was not crying!  I had to ask the doctors for painkillers so the nurse had to give them to her. The following day she was given a colonoscopy and was diagnosed with Ulcerative Colitis.  The nurse who previously had been reluctant to give her medication became very helpful. Her attitude changed towards Eleanor.

Eleanor has been undergoing counselling to help her come to terms with this long term chronic disease.  She has changed dramatically from the bubbly, happy, extrovert to a shell of her former self.  She struggles to attend school and only is in contact with two other people outside of school.   Her social circle has been reduced dramatically. She feels some people appear to pity her making her even more self conscious.  Eleanor spends most of her time on her own. She hates going out and meeting people unless she feels she is in a safe environment. She will go occasionally with her sisters, who will drive her to different places, but they know when Eleanor is tired and they can cater to her needs without making her feel she is ‘different.’

This all happened to my once healthy girl after being given Cervarix, the HPV vaccine.

Filed Under: Cervarix United Kingdom Tagged With: , , ,

Post Cervarix Syndrome Victim: Brianna, Newport Pagnell, Buckinghamshire UK

December 15, 2011 By 9 Comments

Story as told by Brianna’s mum, Laura.

Post Cervarix Syndrome: Brianna from the UK

Post Cervarix Victim

Brianna is just 13 years old. A girl who was in the top sets at school, represented the school in athletics and has been a dancer since she was the age of 2, performing at London’s famous Sadler’s Wells Theatre and the Royal Albert Hall. In more recent years, she developed a love of drama and wants to be an actress when she is older. She is a popular girl, whom people always describe, as being very mature, fun loving and kind.

This was her life until Wednesday, October 19th 2011, exactly 3 weeks after having her first Cervarix vaccine jab at school on Wednesday 28 September. That day, she came home from school complaining of feeling very unwell, nausea being the main symptom.  I kept her off school the next day, but on Friday being as it was the last day of term I sent her back. Later in the day, I received a phone call from the Matron saying she had a temperature and was feeling unwell, so could I collect her.

Initially I thought it was maybe connected to her period as she had this the same day. However, by the following Monday she was still feeling the same, nauseous, hot and cold and now also very faint. I called and spoke to our GP, who also thought the symptoms were connected to her period and prescribed some tablets to help with pain and nausea (she did not have any pain).

By now, it was half term week. Every day I attempted to go out with Brianna and her younger brother, but each time we were never out for long before she was begging to go home, as she felt so unwell. The tablets had no affect at all. Once home, she would lie on the sofa and just sleep.

I called the doctor again the following Monday, 31st October 2011. This time she told us to come in to see her. She requested a urine test and gave Brianna a thorough examination (she had a high temperature again) and prescribed Stemetil to help with the nausea – this does really help.  All this time, Brianna had continued to feel nauseous, was experiencing hot and cold flushes, and feeling faint, dizzy, lethargic and generally unwell. It did not appear to be improving.  We went back to the GP on Thursday when it was confirmed the urine tests were clear. The next step was a blood test, which would also include a check on glandular fever. This was done the next day.   Brianna had to be absent from school all of that week.

She went back in to school on the following Monday and Tuesday, but came home quite pale and tired. She cried because the other children laughed at her when her face went red as a result of a hot flush.  We returned to the GP on Wednesday for the blood test results which were all clear. By now, Brianna had also started to complain about aching arms and legs and a sore throat coming and going. The GP requested yet another blood test to check her thyroid. This has just been done and we are waiting for the result.   She remained off school the rest of the week.

Then only just the other day, it was suggested to me that it could possibly be the HPV vaccine which was causing all these health issues. Something neither of us or the doctor had even considered.  Once I started researching, I realised it could very well be the diagnosis as there were just too many similar health reactions being experienced by other girls who had become ill after HPV vaccinations.

Recently, my GP has spoke to GlaxoSmithKline, the vaccine manufacturer. They confirmed that with the exception of the flushes, all her symptoms are known side effects.  My GP is now putting in an urgent referral to the Paediatrics at the hospital and will call me soon with the latest blood test results.

Brianna did return to school on Monday. She also went in on Tuesday but was feeling very weak and had a very painful sore throat. By midday the Matron called for me to go and collect her.  She is still off school.

She should have received her second injection of Cervarix on the 16th of November 2011, but both her doctor and I agreed that it was not a good idea!  Some days are better than others, but we have found the nausea is constant unless she takes her Stemetil.  One other interesting thing is that Brianna has had regular annual eye tests and always had perfect vision. However, at her last test (3weeks ago), she was found to be short sighted. Is this another reaction???

Update: Brianna and I have now agreed on a part time schedule with the school, where she just attends the core subjects. However, we are finding that even doing just 2-3 hours at school on one day, makes Brianna feel so ill, and then she cannot attend school the next day – it’s a vicious circle.  She is also now experiencing intermittent pain in her legs and arms, in particular, near the site of the injection.  All her blood tests have come back clear and I have been advised that we have an appointment with the paediatrician on 13th December 2011.

Yesterday (2nd December 2011), I spoke to the matron about some hurtful comments other children were making when Brianna was in school e.g, “why aren’t you dead yet Brianna?”  I am sure you can imagine how upsetting this was to both Brianna and me.   The matron was disgusted and is going to speak to the pupils about how you should respect that people are unwell and not be nasty, in a forthcoming school assembly, without being specific about Brianna.  As if my lovely daughter does not have enough to put up with without having to listen to these terrible comments that are being said about her

We will never give up. We will continue fighting in our daughter’s corner and do all in our power to make certain those in authority are aware of the damage that is happening to many young girls throughout the UK.

Filed Under: Cervarix United Kingdom Tagged With: , , , , ,

Victim of Post-Gardasil Syndrome: Camille from Quebec

December 2, 2011 By 16 Comments

Story as told by her mother, Elysabeth Gagnon

Post-Gardasil Syndrome

After much research and discussion, my daughter and I had both signed the required form to refuse the Gardasil vaccine currently being administered in Quebec. In order to assure there would be no problem, I also phoned the school the morning the first dose of Gardasil was to be offered and spoke to the school nurse to inform her that my daughter would not be receiving this vaccine. The nurse assured me there would be no problem.

On 28 September 2011, my daughter presented the signed vaccine waiver and informed the school nurse that she would not receive the HPV vaccine. The nurse then set aside 15 minutes to inform Camille about the benefits of the vaccine.

After the discussion, Camille repeated her decision to refuse the Gardasil injection. The nurse then handed her additional informational documents and told Camille that if she changed her opinion, she could always inform the other nurse.

Subsequently, Camille met with a second nurse, this one outraged that my daughter refused the vaccine. She had set aside 10 minutes of her time to try to convince Camille again. The only side effect she mentioned was headache. This nurse pointed out that Camille would be the only one in the school to refuse Gardasil. She told her the consequence of refusing meant she could get cancer and die, only because she was being stubborn. She continued on until Camille finally granted her consent.

At that point, the nurse told her not to show her health record to her mother in order to avoid any discussion on this at home.

My daughter was pressured until she agreed to be vaccinated. Her ‘consent’ was neither freely given, nor appropriately informed. Camille’s consent was obtained through intimidation. A 14-year old girl does not have the experience to deal with authority figures in the same manner as an adult.

In my opinion, the way Camille was treated was an abuse of power and a breach of my trust in school health authorities.

Without my consent, or knowledge, Camille received her first Gardasil injection at 3:45 pm on that day. By 4:00 pm she was on the bus to come home. She already had a stomach ache and a headache. She decided to try and rest during the 45 minute drive home. She lost consciousness. Students noticed and tried to wake her up, but when they did she acted confused. They informed the bus driver, who promptly stopped the bus and called an ambulance.

She was admitted to St-Jérômes Hospital barely 2 hours after her injection. She has no memory of how she got to the hospital other than she recalls waking up in the ambulance. The hospital staff said there was no link between her condition and the vaccine. They recommended consulting an allergist.

The future brought fever, rash, fainting, fatigue, weakness, headaches, stomach pains and more consultations. She is now being treated for a urinary infection, abscesses in her mouth and oral candidose.

No link?

I lodged a formal complaint to the Order of Nurses of Québec. Teenage girls must be informed and warned of all possible side effects – not be left in the dark.

Today, nearly two months after the first shot of Gardasil, my daughter still has headaches that will not go away. Day after day she has to deal with them. She has no more appetite and has lost weight. This girl, who has been to an ophthalmologist every year since she was two years old and exhibited perfect vision, has now been told she will have to wear glasses because of her deteriorating vision.

For 11 years her vision was perfect, no longer – no link?

The doctor from the Canadian Health Agency told us there was no link between her symptoms and Gardasil. Furthermore, she said that Camille was sick and had all of those symptoms prior to vaccination. How can she say that?

I swear to God, my daughter’s health was in perfect condition BEFORE she got this shot.

Filed Under: G / S Canada Tagged With: , , ,

Post-Cervarix Syndrome Victim: Emily, Wakefield, Yorkshire

November 30, 2011 By 6 Comments

Story as told by Caron, Emily’s mum

Post-Cervarix Syndrome Victim

My daughter Emily has always been bright, fit, healthy and energetic. She’s a member of many of the school sports teams, she dances competitively and lights up any room when she walks into it because every pore of her body exudes life – she’s an absolute joy to be around. Or, that was the case until last October when she began her course of Cervarix vaccinations.

Until last October, her medical history had been ‘unremarkable’, as noted on a recent letter from her pediatrician. She has always been extremely healthy and fit and has enjoyed a healthy, balanced diet. She is allergic to penicillin and suffers from hay fever.

She received her course of HPV jabs (Cervarix) through her school in October (2010), December (2010) and May (2011).  When she brought home the consent form, I wasn’t aware of any serious adverse effects and she was really keen to have the vaccination as it had been discussed at school.  The official literature claimed only mild and temporary side effects.

Three weeks after her second jab she became extremely ill with a flu like virus: vomiting, fever & chills, headache, muscle aches and weakness, extreme exhaustion, sore throat, severe abdominal pains, rash on her face and torso & dizziness. Medical advice was plenty of fluids and rest – she was in bed ill for three weeks. We put it down to a bad bout of ‘flu.’

Then the fun started! She would appear to be on the mend, then relapse with exhaustion, nausea, abdominal pains and dizziness. Her muscles frequently ached, her joints, particularly her knees often hurt and she had a constant sore throat and regular headaches.  This went on and on and for over 6 months. She had three full blood tests which were ‘normal’ and negative for glandular fever. The doctor diagnosed ‘Post Viral Fatigue’.

It was a terrible six months and as a family we ran the full gamut of emotions. ‘Tiredness’ seemed a lame excuse for missing school, so I put pressure on Emily to attend when she wasn’t well enough and felt terribly guilty for doing so, arguments were frequent as my husband I disagreed about what, if anything, was wrong and what to do about it. Emily became upset thinking that we didn’t believe how ill she felt and her classmates sometimes gave her a hard time about it.

As a mother I knew something was very wrong, something had turned off the light inside my daughter and I felt as though gradually her body was gearing down bit by bit. She looked and acted as though the life had been drained out of her.

Then one day in July the penny just dropped and I realized that her illness had started after her second HPV jab. A morning’s research on the internet confirmed there were many more girls experiencing the same symptoms – exactly the same symptoms! Everything fell into place.

From there, I contacted Freda Birrell through the SaneVax website. She has been my guide, giving me strength, putting me in touch with other parents and keeping me sane! Emily was referred to a pediatrician at Pinderfields Hospital(Wakefield), who diagnosed Chronic Fatigue Syndrome and said there was no treatment, she would gradually get better.  Two days after this pediatrics appointment, we were in A&E because Emily had lost the feeling in her right arm and right leg.  At the moment we’re waiting for Emily to get a referral to a different consultant for a second opinion – our GP has been very supportive and is currently researching the best option for us.

Emily is much better than she was at the start of the year, but still suffers bouts of fatigue and lethargy. She has a constant sore throat, frequent headaches and abdominal pain. Her symptoms change, so we never know what will present next. The latest has been a breathlessness that she gets from the slightest activity, like running up the stairs. She has good days and bad days, but her good days are equivalent to a pre-vaccination bad day.

None of the doctors we have consulted stated that they believe the vaccine to be responsible for Emily’s illnesses, although none have totally discounted it. From the morning the penny finally dropped for me, I have had no doubt whatsoever that Emily’s problems are a direct result of her Cervarix vaccinations and as I speak to other parents and research the vaccine, it merely confirms what I already know.

The final confirmation came recently when I requested Emily’s school attendance record. I had thought that Emily had been fine with her first jab, but three weeks after her first jab she was off school for one day in that week and three days in the following week.  Three weeks after her second jab she was very ill for three weeks.  Three weeks after her third jab, we were on holiday, during which she was tired, lethargic, emotional and moody throughout.

The three week lag between the jab and symptoms had stopped me from making a connection between the vaccine and the reaction and so my daughter went on to have all three jabs.  How many other parents are not making that connection and how many doctors are not making that connection? What would the adverse reaction statistics for the vaccine look like if parents reported all health problems for six months after each vaccination?

We are not warned that these side effects exist in the severity they do and for the length of time they do. And we are not warned that side effects can take weeks to become evident and that we should report them when they do.  When will GlaxoSmithKline be held accountable for keeping this information from the girls, parents, doctors and nurses?  It’s an absolute scandal that this is allowed to go on without further investigation.

The girls need answers, the families need answers and this pain and suffering has got to stop.

Filed Under: Cervarix United Kingdom Tagged With: , , ,

Gardasil Victim: Kirstie, Lima, NY

November 22, 2011 By Leave a Comment

Story told by Sharon, Kirstie’s Mom

Kirstie from New York

Kirstie’s life before Gardasil was full of so many activities – including dodgeball, games at summer recreation, soccer, basketball and softball.  She is also a very talented musician, playing the clarinet, saxophone, ukulele and piano and singing in all of her school’s choruses.  Kirstie actively participates in a musical theatre class and her school’s drama club (she has had lead roles in school plays and musicals).  Her dream is pursuing a career in vocal performance or a profession involving music.  She is an A student with a wide variety of interests.   Fortunately the musical side of her life has not been affected by her health problems after Gardasil.

Kirstie had her first vaccine on April 23, 2007 (she was 12) and we saw nothing strange at that time.  Within the next few weeks, she began to develop large, dark bruises on her arms and legs, which I attributed to her playing soccer (she was the goalie) and lacrosse.  My husband was beginning to worry about the bruises but didn’t say anything to me.  On May 29th she received the second shot.  Again, the only thing happening was the bruising.  On June 17th, she began her second menstrual cycle ever, which lasted 10 days.  On June 18th, I took her to the doctor to have her tested for strep throat, which came back negative.  The nurse practitioner commented about the bruises and said something about Kirstie playing sports – she was not concerned about them.

On June 29th while at an amusement park, Kirstie started haemorrhaging from her vagina and it lasted for 2 hours.  It stopped and then began again the next day, continuously bleeding for 2 hours.  On Monday, July 2nd, I got her to her paediatrician’s office and they realized that her platelets were very low (18,000).  They immediately sent us to the hospital to meet with a paediatric haematologist who told us that she had Idiopathic Thrombocytopenic Purpura (ITP).

When I mentioned that the only thing that Kirstie had done differently was having the HPV vaccine, he said he would have to think about this as his granddaughter was scheduled to have her first dose that month.  That is the only time he would ever confirm the possibility that the vaccine caused her ITP.  Because no one understands what causes ITP and because they believe it could be caused by a virus, the fact that Kirstie was diagnosed with a virus during this time is enough to have the medical professionals believe it was not caused by a vaccine.  However, the virus, if it existed, did not appear until after Kirstie was vaccinated.

Throughout that summer, Kirstie’s platelets continued to drop and in late July she received a treatment that boosted her platelet level to normal.  It lasted about 30 days and then her platelets were low for the next several months.  Kirstie has missed several soccer, basketball and softball seasons because of her ITP.  Last year (2010) she missed all seasons and right now her platelets are too low for her to play.  She does not suffer from nosebleeds or excessive bruising/bleeding so her condition goes unnoticed unless we have her platelet level checked.

We are very lucky; in the spring of 2010 she developed mono – her platelets did not drop very much and she recovered quickly.  Kirstie does not feel ill from ITP – it really only affects her playing contacts sports which are a big part of her life.  We naturally hope that her condition will improve and that her health returns to normal and she can get back to doing all of the things she really enjoys.

Filed Under: G / S United States Tagged With: , ,

Cervical Cancer – HPV (human papillomavirus) Vaccination: How Safe Is It?

November 19, 2011 By 1 Comment

By Sherrel Halliday, Nairn, Inverness, Scotland

 

Deborah - August 2010

My perfectly healthy, academically bright, fun loving, sporty, active 13 year old daughter, Deborah, who enjoyed doing typical teenage things had the HPV vaccination, Cervarix, the 1st dose in September and the 2nd dose in November 2010.  She did not follow up with the 3rd vaccine.  Why?

Like every parent I wanted to protect my daughter from Cervical Cancer.  I read the leaflet, looked up the NHS website and spoke to the school nurse and her superior.  It’s safe.  But was it?

Now 1 year on I look back at my daughter’s life of pain, suffering, misery, doctor, A&E, hospital, rheumatologist, podiatrist, physiotherapist and hydrotherapy appointments.  The sleepless nights, the worry and my guilt!  Because, yes, I do feel guilty, that I did not do more research before I agreed to let my very precious daughter have the HPV vaccine. 

More than 1 year of our lives wasted.   I am questioning the safety of this vaccine.  How safe is it?  Every parent should question the validity of this vaccine and its safety record.

Sherrel & Deborah October 2011

One by one her activities stopped:  Judo, Roller Bowl, Cycling, Badminton, Basketball, Guitar, Piano and PE, to name but a few.  Stiffer and stiffer she got.  Unable to rake leaves in the garden or hoover the sitting room floor or open a bottle of water! Unable to go walks on the beach or in the woods with our two dogs.  Her enjoyment of life RUINED, taken from her.

Panicked by the realisation that I thought she had some type of paralysis, I had started taking her swimming every day before going to school.  A girl who was once agile, and had been able to swim 64 lengths reduced to 2 lengths using a float.  Day by day we attended the swimming pool building up the lengths.  Until one day out of the blue, at school, she collapsed.  She’d abdominal pain.  Rushed by ambulance to hospital she underwent an emergency operation for the removal of her appendix.  She had acute suppurative transmural appendicitis with peritonitis.  This was followed by 2 infections.  She missed 10 weeks of school.  Whether the appendix was associated with this I do not know for sure but I do wonder as it nags at the back of my mind. 

Despite the removal of the appendix, she was becoming sicker.

She walked with aid of a walking stick and could hardly put one foot in front of the other.  We got special insoles for her shoes to absorb the shock, similar to what the Police wear.  We bought a memory foam bed to help comfort the aching joints. She had to wear dark glasses because of light sensitivity.  This is so NOT COOL for a little girl of 14.

Then we watched a video by Grace Filby about mineral water. It seemed at first unbelievable that perhaps a simple mineral water could help.  But I was desperate for a remedy.  

Why mineral water?  Well it is rich in silica and silica is antidote to aluminium poisoning.  Aluminium being a neurotoxin contained within the HPV Vaccine.  I had to try it. 28 weeks ago my daughter started drinking 1.5 ltrs of a specific mineral water each day. 

28 weeks ago we were in the depths of despair.  But gradually we saw improvements.  After 3 weeks of just little things like small movements, I could feel hope coming back into my life. I started researching foods that contained silica.  It was in everyday things like potatoes, cabbage, onions, cucumbers, porridge, cereal, strawberries.  The improvement continued.  I worked hard – mineral water, foods, exercises, swimming, tiny walks, kept her motivated when things were bad, and she was determined to keep up with her school work.

Now she’s back in school with all teachers recently reporting how well she had done after missing 10 weeks of school.  She’s not fully recovered.  She can’t do PE.  But she can play the piano again and she swims a lot.  But we are not out of the woods yet.  We still have a lot of problems, obstacles to overcome like the fatigue, but I have faith.  We take each day as it comes.

So parents – after reading our story would you call this long list of illnesses a co-incidence?

Or would you question it as possibly a very severe adverse reaction to the HPV? 

Please think very carefully, think twice, research from independent sources and ensure that when you make this huge decision, that it is the right one for your child. 

In the meantime I’m trying to create awareness of the devastating impact that a vaccine can have when it goes wrong. I’ve written to various MSP’s with my concerns and asked them very serious questions. I would urge parents with any concerns to do the same.  I have also written to the First Minister, Mr Alex Salmond who has kindly replied and indicated that I shall receive shortly a reply from the Minister for Public Health, Mr Michael Matheson.

I have to say a special thank you to Dr P Coulter from Lodgehill Clinc in Nairn.  This GP has given us an outstanding service and has supported as consistently throughout this ordeal and done every test in the book to find a solution to her current unexplained symptoms.  His support is greatly appreciated.

If parents are looking for support, contact Freda Birrell via email at info@sanevax.org.  She too has been of tremendous help – just when I thought it was only me – she put me in touch with other parents with this unfortunate and horrible life changing experience.

If you would like more information on the mineral water that was so helpful for us, visit Grace Filby’s website at www.relax-well.co.uk.

Follow me on Facebook as I try to unravel this mess and as I try to get to the real Truth About Cervarix from Government Officials. 

Note:  Sherrel has written a poem to express some of her thoughts about Cervarix.  Please read it here.

Filed Under: Cervarix United Kingdom

Melissa, Barnsley, Yorkshire, UK

November 19, 2011 By 1 Comment

Story as told by Alison, Melissa’s mum

My daughter used to live life to the full, loved being out with friends and it was not unusual for suddenly a troop of youngsters to come into my kitchen looking for their tea. It meant that the house was always full of life and I liked it that way. Melissa was very popular and she had a large group of friends. She was a sensible and mature girl too. She just loved her seven year old sister Brooke and she would take her to the park and mind her if I had to go out.

Then that fateful day when she told me “we are going to get cervical cancer jabs at school”. I knew the vaccine was supposed to prevent the HPV viruses which could lead to cervical cancer but other than that I did not know too much about it. I had assumed I would receive more information from the school. Melissa had her first jab which appeared not to cause a problem and then after her second jab her joints started to swell immediately – starting with her right thumb then spreading to every other joint. Within a week Melissa was really ill. She could not physically move and was also covered in a rash from head to toe. She was experiencing high temperatures, sweats, chills, vomiting, severe headaches, pain in every joint and constantly slept for weeks. We could not even touch Melissa as she was so sore.

We had home visits from the local GP and visited Barnsley Hospital on a few occasions. The hospital sent her home with Piriton and said it was an allergic reaction to the HPV vaccine. Eventually we were referred to Leeds General Hospital to see a consultant, by this time Melissa’s health had really deteriorated. I was really frightened that I was going to lose her. Many tests and x-rays were taken which showed an enlarged spleen. After a little while the consultant diagnosed Melissa as having systemic juvenile rheumatoid arthritis (Still’s disease).

From that day Melissa has been on a high dose of steroids and drugs to reduce inflammation. She also was given a chemotherapy treatment (Methotrexate injections) but then after a while it was found that this was not strong enough on its own and after trying other combinations, they eventually introduced an infusion called Tocilizumab which after three months seemed to be working. By this time Melissa had been on steroids for such a long time that she had gained a lot of weight which has caused other problems.

Two years later and Melissa is still suffering, she is still on the Methotrexate and the infusion as well as having a Methylprednisolone injection if required. The downfall to having all of this medication is that she gets a lot of infections and has to have antibiotics a lot of the time. Melissa expects to be on this form of treatment for another three years – she missed the last two years of school including missing all her exams. She still struggles with day to day tasks and we have also recently had to move because our previous house could not be adapted to suit Melissa’s needs. Melissa still sleeps a lot and is very lethargic and has to be careful not to over use her joints otherwise she ends up being in a lot of pain.

I wish now I had never given my consent to her having the injection and would give anything in the world for my daughter to have her life back. Life before this vaccination was just wonderful for Melissa and I hope that one day she can recover enough to get some of it back.

Filed Under: Cervarix United Kingdom

Lauren from Rochdale, Lancashire, UK

October 26, 2011 By 1 Comment

Story as told by Susan, Lauren’s mum

Lauren has always been the kind of girl who could never sit still for long. She went swimming every weekend with her friends. She loved any physical activities and was very strong. She had only been to the doctors twice in her life; once for tonsillitis and once with appendicitis. The appendicitis ended up with her being in hospital to have her appendix out but she recovered very quickly from this. Other than those two incidents, she was hardly ever ill, even with colds or flu.

I will now tell you what life has been like for Lauren after having one single injection of Cervarix. Lauren was only 12 when she had her first jab of Cervarix at the beginning of October in 2010. She came home that day telling me the injection didn’t hurt, this was said amongst other things that had happened at school that day but she wasn’t feeling too good. I put this down to the vaccine as they do tell you that you might get a temperature or feel a bit off.

A few days later she was complaining that her shoulder was hurting when she moved it. A couple of days after that her elbow was hurting too. She also had a rash in between the tops of her legs like nothing I had ever seen before. I thought it might be a heat rash, or perhaps from her legs rubbing together, but not related to the soreness in her joints. I took her to the doctors and he said it was most likely she had pulled a muscle and said to take ibuprofen for a week. She did this and after a week had passed I took her back to the doctors as her condition had not improved. The doctor then gave her Diclofenex and said she probably just needed another week of resting.

After that week had passed I took her to see a different doctor as her knees were now hurting and she was constantly coughing and feeling completely drained. He said he thought she had severe tonsillitis as she had a temperature as well and that this was affecting her joints. He put her on antibiotics. She just got constantly worse after this. All her joints swelled up, she was coughing, she lost around a stone in weight (14 pounds) and was covered in this rash which kept coming and going. It now reached the stage that she had to stay off school because all she was doing all day was sleeping.

Eventually, after numerous more visits to the doctors for blood tests etc, she was admitted to the children’s ward at our local hospital. At this point she was in a wheelchair because she could barely move and was in agony. There they put her on an antibiotic drip, again saying she had tonsillitis. This was over Christmas time, so they let her come home for a few hours on Christmas day to open her presents.

After the antibiotics did nothing, they just carried on giving her strong painkillers and decided to transfer her to Manchester Royal Children’s Hospital where there is a Rheumatology specialist. After about a week of being at that hospital and tests to rule out leukaemia, they diagnosed systemic onset juvenile idiopathic arthritis. They started treatment with a steroid infusion for 6 days and then oral steroids after that. They also started her on Methotrexate injections which she had to have weekly. Her condition did improve quite quickly after this new treatment started. She also had physiotherapy and we did some exercises at home with her everyday as well. After about 2 months the doctor decided to try and wean her off the steroids as she was doing a lot better and only had some pain in her knees, which they were going to inject with steroids and drain some fluid from them as well.

When they started weaning her off the steroids her symptoms started coming back. By the time she was down to 5mg of Prednisilone she was worse than ever and was readmitted back into hospital with fluid round her heart and hardly able to move, or breathe. After another 3 days on 1000mg Prednisilone drip she was feeling a lot better again. This time they decided to start another medication on top of the ones she was already on, called Anakinra which she was to have a daily injection of 100mg. They also discovered the Prednisilone was causing steroid induced hyperglycaemia. Her blood sugars were over 20, so we had to start blood sugar testing. They were going to put her on insulin but after Lauren argued that she didn’t want another injection everyday and that she would control her diet, they allowed her to try Metformin which has worked pretty well so far as long as she eats well.

At the moment Lauren has some reaction to the Anakinra injections and gets quite sore, and is getting itchy lumps on her arms but these aren’t lasting as long as they used to so we think her body might be getting used to tolerating it a bit more. The doctor is talking about putting her injections up to 2/3 a day because she does still get flare ups but at the moment she has been quite well for the past 6 weeks, she just gets very tired. If she overdoes any exercise or walking etc though she is in a lot of pain in the evening and gets a temperature and the rash.

She hasn’t been to school for almost a year so has missed a lot of school work and has also missed out on socialising with her friends.  Sadly some of her friends have called her fat when they have seen her because the steroids have made her put on quite a bit of weight so she cries about that. We’re just hoping that she continues to get better though the doctor has said she will probably be on treatment for life but they will review this when she has been in remission for 2 years.

My daughter has been training at the hospital to do her own injections every day which will save her having to go so often to the hospital to get all these jabs.  She has however had a bad flare up again just recently and the Consultant Rheumatologist decided that the Anakinra just wasn’t working so he has taken Lauren off this medication.  She is now on a fortnightly infusion of Tocilizumab and so far this seems to be working but unfortunately she is back up to 20mg of Prednisilone as well.

One good piece of news is that Lauren has now managed to get back to school for almost a month now. She has only had to take a few days off here and there when it is just too painful for her to walk. She also gets infections quite a lot as the Methotrexate is a chemotherapy treatment so it suppresses the immune system, as do the steroids and the Tocilizumab.

I should just like to say that there is no history of rheumatoid arthritis in the family at all. I would give anything in the world for my daughter to be able to get back to her life before Cervarix.

Filed Under: Cervarix United Kingdom Tagged With: , ,

Gone After Gardasil: Christina, Maryland

August 15, 2011 By 16 Comments

ChrisChristina Richelle Tarsell – Maryland

November 1986 – June 2008

Born in November 1986, Christina had the world by the tail. Chris was an honors student throughout high school and college. She had just completed her Junior Year in Studio Art, at Bard College in New York, and was looking forward to returning to her summer job at the Center for Curatorial Studies. She was anxious to begin work on her senior project.

Art was her passion. She loved texture, light and color. Chris not only had vision, she had talent. She served as art editor of two literary magazines, one in high school and another in college. Her personal talent was evident by the many awards she won at juried art shows.

Chris did not stop with one passion, she was also an avid and accomplished athlete. She played baseball on the boys’ team in middle school, varsity softball during high school and tennis in college on an award winning team.

As if that were not enough, Chris took her spare time to devote herself to community service. She was active in church, Girl Scouts, the National Honor Society and Amnesty International. Any organization she participated in was proud to count her as one of their team.

All of that ended 18 days after her third injection of Gardasil, when she was found dead in her bed at college. Chris’s abrupt departure from this world has left a multitude of people wondering what happened to this sweet, spirited, generous and caring individual who was a credit to the human race.

Chris’s mother says, “Christina was my only child. I hope no other parent has to experience what it is like for the police to come to your door and tell you your child is dead.

Chris was the light of my life. It made me cry when I later learned she wrote on Facebook that I was her hero. There is no greater love than that between a parent and a child. The lives of those she touched will never again be the same. We miss you, Chris.”

Written by: Norma Erickson, Vaccines Examiner

For more information, read Emily Tarsell’s story here.

Visit Chris’s website here.

email: chriscares@live.com

Filed Under: Vaccine Victims Memorial

Gone After MMR and DTP: Freek, The Netherlands

August 15, 2011 By Leave a Comment

Freek Hagoort – The Netherlands

8 years old at time of death

Following are excerpts from an article written by Anneke Bleeker. Read the full text here.

Family of criminal decides whether he should be punished? Is this possible in our country, in the time we live in; or, is it a sign of the time in which we live? A criminal who has a lot to answer for, is not judged by independent judges, but by his own family!

The verdict is clear: you don’t hand over your own family to a possible prison term, even when the offense warrants exactly that. Who would believe this scenario could happen?

Unfortunately, it appears that is just what is happening. Freek was an ordinary boy, like thousands of others his age. He played with his friends, went to school, played football and performed all kinds of activities boys his age do. He was a normal boy, part of a family; he had a father, mother and brother. Freek Hagoort did not become ‘special’ until after his death.

Freek Hagoort died just before his ninth birthday, only three days after he received his MMR and DTP vaccines. He died on 9 March 2009. This is reported in various ways, through newspapers, books, radio and television shows, and lectures. Only after his death is his name known. He is now a ‘special child.’ Freek is a special boy who died as the result of vaccination, recognized by everyone except the Government!

It seems government health officials feel the information should not be brought forth, not under any circumstances! If indeed, should information appear in the newspapers that Freek’s demise was a result of the national vaccination program, the wider implications are known. The vaccination program would be staggering even more than it already is.

You see, Freek died at the same time questions were being raised about the HPV vaccination ‘feast.’ He died at a particularly poor moment, just because of the media frenzy over whether vaccines are reliable, or not. Do they have added value; or are they downright dangerous? Those issues were in focus at that moment, so, the fact that a boy died because of vaccinations that have already been given for decades could not come to light. His death could not have happened at a more inconvenient moment.

When Freek’s parents contacted the general practitioner because the boy had become so very ill, they admitted that this reaction could be a result of the vaccinations, which were given the Thursday before. They were told this type of reaction had been confirmed a couple of times, and one needed not to worry, he would get well.

Following his death, upon contacting RIVM (National Institute for Public Health and the Environment), the pathologist received a clear message that this death had nothing to do with vaccination, so he didn’t have to do an investigation into it. Out of the question!

The parents were treated like capital offenders, who had abused their own child and that was it!

So, at first, according the the GP, Freek’s being so ill could be related to the vaccinations. Death was not considered at the moment. Then, after his death this relationship was out of the question according to RIVM!

The National Vaccine Program for every new-world citizen is launched even before they are born, when the pregnant mother is advised to get the pertussis and flu vaccines. Day one, the HepB vaccine is waiting for the newborn. If parents object, or question–they are told loud and clear that they are being irresponsible.

Who is irresponsible? The Government that wants the population filled up with vaccines, without properly knowing what all it brings about; OR, the parents who want to know all of the facts before vaccination?

(NOTE: The SaneVax team has been informed that the Dutch Institute for Health (RIVM) did the original autopsy and concluded the vaccines had nothing to do with Freek’s death. The parents wanted an independent autopsy conducted, but to this day, the Dutch authorities refuse to provide the necessary tissue samples. Our question is this, “If the vaccines were not related to this young boy’s death, why are the authorities refusing to provide samples for independent appraisal?”

Filed Under: Vaccine Victims Memorial
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