From RTE News Ireland, 13 January 2012
Families who believe their children developed the sleeping disorder narcolepsy after vaccination are disappointed with how little progress has been made.
The group representing families who believe their children developed the sleeping disorder narcolepsy after vaccination are disappointed with how little progress has been made.
They believe their children developed narcolepsy after getting the human swine flu vaccine Pandemrix in late 2009 and early 2010.
They say they are disappointed with how little progress has been made to deal with their concerns and the health and educational needs of those affected.
Sound (sufferers of unique narcolepsy disorder) now represents 31 families and says 22 children have been diagnosed with the disorder, while others are awaiting the results of tests.
Mairead Lawless of Sound said most of the people that had applied for medical cards have now been approved by the HSE and this was of some help towards GP costs.
The children or young adults range in age from 5 to 21 years.
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