The SaneVax team is pleased to announce an opportunity for Gardasil and Cervarix HPV vaccine recipients and their families to help provide data regarding HPV vaccines’ risk versus benefit profile. The study is being conducted by an independent scientist, Dr. Chandler Marrs, and hosted on her website, Hormones Matter TM. The purpose of this study is to delineate the range, frequency and severity of adverse events as well as determine which, if any pre-existing conditions predispose one to adverse reactions. As now the vaccine has been on the market for several years, the study also looks at the longer-term side-effects and adverse events.
Whether your experience with Gardasil or Cervarix has been good, bad, or ugly, the SaneVax team encourages you to take a few minutes to complete the Gardasil Cervarix HPV Vaccine Survey. Please, help provide the information people need in order to make an informed choice when it comes to HPV vaccines. Help provide accurate data to those medical professionals who prescribe HPV vaccines.
Hormones MatterTM is a health education and direct-to-patient research community, committed to giving women the information they need to make informed medical decisions. The Gardasil Cervarix HPV Vaccine Survey is the third, in what Dr. Marrs hopes will be a long line of research projects tackling the underserved areas of women’s health. As Dr. Marrs tells her story:
I am an independent scientist, a fierce women’s health advocate and a mom. I have background in women’s health research, specifically the role of hormones in various conditions. My passions are research, diagnostics and health education. Over the last year, I developed a health site called Hormones Matter. There we cover all-manner of health related topics, even a little health policy, politics and humor. We are totally unfunded and operate purely on the passion of volunteers. I also have a company called Lucine Biotech and an organization called Lucine Women, currently unfunded as well, that will one-day offer lab based research opportunities and develop diagnostics in critical areas of women’s health.
Undeterred by the lack of funding, I decided that I would no longer wait for funding to conduct the research that needed to be completed. It was time to bring more data into the field of women’s health. About three months ago, I began conducting online research. I began with an oral contraceptives study looking at the off-label uses of oral contraceptives, along with side-effects and adverse events associated with the different formulations/brands. Phase 1 of the Oral Contraceptives Survey has over 600 respondents. The next study launched was the Hysterectomy Survey, and it has over 200 respondents so far. Last week, we launched our Gardasil Cervarix HPV Vaccine Survey. My plan is to tackle critical and ignored areas of women’s health care, one survey at a time.
As an unfunded, independent researcher, I am crowdsourcing the data collection. I rely heavily on social media and community advocates and organizations to spread the word. As a strong believer in listening to patients, I also rely heavily on the broader patient communities to inform the direction and design of the research and the even topics we cover on Hormones MatterTM. Do not hesitate to email questions, concerns, suggestions and ideas: firstname.lastname@example.org
All surveys are anonymous. They are hosted on a secure cloud site (Survey Monkey). The data reports from these surveys will be published and available to women and their physicians.
I want to thank SaneVax for supporting these efforts and to personally thank all of the survey respondents who take the time to complete this survey. Together we can improve women’s healthcare, one data point at a time. Thank you.