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Victim of Post-Gardasil Syndrome: Camille from Quebec

December 2, 2011 By 16 Comments

Story as told by her mother, Elysabeth Gagnon

Post-Gardasil Syndrome

After much research and discussion, my daughter and I had both signed the required form to refuse the Gardasil vaccine currently being administered in Quebec. In order to assure there would be no problem, I also phoned the school the morning the first dose of Gardasil was to be offered and spoke to the school nurse to inform her that my daughter would not be receiving this vaccine. The nurse assured me there would be no problem.

On 28 September 2011, my daughter presented the signed vaccine waiver and informed the school nurse that she would not receive the HPV vaccine. The nurse then set aside 15 minutes to inform Camille about the benefits of the vaccine.

After the discussion, Camille repeated her decision to refuse the Gardasil injection. The nurse then handed her additional informational documents and told Camille that if she changed her opinion, she could always inform the other nurse.

Subsequently, Camille met with a second nurse, this one outraged that my daughter refused the vaccine. She had set aside 10 minutes of her time to try to convince Camille again. The only side effect she mentioned was headache. This nurse pointed out that Camille would be the only one in the school to refuse Gardasil. She told her the consequence of refusing meant she could get cancer and die, only because she was being stubborn. She continued on until Camille finally granted her consent.

At that point, the nurse told her not to show her health record to her mother in order to avoid any discussion on this at home.

My daughter was pressured until she agreed to be vaccinated. Her ‘consent’ was neither freely given, nor appropriately informed. Camille’s consent was obtained through intimidation. A 14-year old girl does not have the experience to deal with authority figures in the same manner as an adult.

In my opinion, the way Camille was treated was an abuse of power and a breach of my trust in school health authorities.

Without my consent, or knowledge, Camille received her first Gardasil injection at 3:45 pm on that day. By 4:00 pm she was on the bus to come home. She already had a stomach ache and a headache. She decided to try and rest during the 45 minute drive home. She lost consciousness. Students noticed and tried to wake her up, but when they did she acted confused. They informed the bus driver, who promptly stopped the bus and called an ambulance.

She was admitted to St-Jérômes Hospital barely 2 hours after her injection. She has no memory of how she got to the hospital other than she recalls waking up in the ambulance. The hospital staff said there was no link between her condition and the vaccine. They recommended consulting an allergist.

The future brought fever, rash, fainting, fatigue, weakness, headaches, stomach pains and more consultations. She is now being treated for a urinary infection, abscesses in her mouth and oral candidose.

No link?

I lodged a formal complaint to the Order of Nurses of Québec. Teenage girls must be informed and warned of all possible side effects – not be left in the dark.

Today, nearly two months after the first shot of Gardasil, my daughter still has headaches that will not go away. Day after day she has to deal with them. She has no more appetite and has lost weight. This girl, who has been to an ophthalmologist every year since she was two years old and exhibited perfect vision, has now been told she will have to wear glasses because of her deteriorating vision.

For 11 years her vision was perfect, no longer – no link?

The doctor from the Canadian Health Agency told us there was no link between her symptoms and Gardasil. Furthermore, she said that Camille was sick and had all of those symptoms prior to vaccination. How can she say that?

I swear to God, my daughter’s health was in perfect condition BEFORE she got this shot.

Filed Under: G / S Canada Tagged With: , , ,

Gardasil Victim: Kirstie, Lima, NY

November 22, 2011 By Leave a Comment

Story told by Sharon, Kirstie’s Mom

Kirstie from New York

Kirstie’s life before Gardasil was full of so many activities – including dodgeball, games at summer recreation, soccer, basketball and softball.  She is also a very talented musician, playing the clarinet, saxophone, ukulele and piano and singing in all of her school’s choruses.  Kirstie actively participates in a musical theatre class and her school’s drama club (she has had lead roles in school plays and musicals).  Her dream is pursuing a career in vocal performance or a profession involving music.  She is an A student with a wide variety of interests.   Fortunately the musical side of her life has not been affected by her health problems after Gardasil.

Kirstie had her first vaccine on April 23, 2007 (she was 12) and we saw nothing strange at that time.  Within the next few weeks, she began to develop large, dark bruises on her arms and legs, which I attributed to her playing soccer (she was the goalie) and lacrosse.  My husband was beginning to worry about the bruises but didn’t say anything to me.  On May 29th she received the second shot.  Again, the only thing happening was the bruising.  On June 17th, she began her second menstrual cycle ever, which lasted 10 days.  On June 18th, I took her to the doctor to have her tested for strep throat, which came back negative.  The nurse practitioner commented about the bruises and said something about Kirstie playing sports – she was not concerned about them.

On June 29th while at an amusement park, Kirstie started haemorrhaging from her vagina and it lasted for 2 hours.  It stopped and then began again the next day, continuously bleeding for 2 hours.  On Monday, July 2nd, I got her to her paediatrician’s office and they realized that her platelets were very low (18,000).  They immediately sent us to the hospital to meet with a paediatric haematologist who told us that she had Idiopathic Thrombocytopenic Purpura (ITP).

When I mentioned that the only thing that Kirstie had done differently was having the HPV vaccine, he said he would have to think about this as his granddaughter was scheduled to have her first dose that month.  That is the only time he would ever confirm the possibility that the vaccine caused her ITP.  Because no one understands what causes ITP and because they believe it could be caused by a virus, the fact that Kirstie was diagnosed with a virus during this time is enough to have the medical professionals believe it was not caused by a vaccine.  However, the virus, if it existed, did not appear until after Kirstie was vaccinated.

Throughout that summer, Kirstie’s platelets continued to drop and in late July she received a treatment that boosted her platelet level to normal.  It lasted about 30 days and then her platelets were low for the next several months.  Kirstie has missed several soccer, basketball and softball seasons because of her ITP.  Last year (2010) she missed all seasons and right now her platelets are too low for her to play.  She does not suffer from nosebleeds or excessive bruising/bleeding so her condition goes unnoticed unless we have her platelet level checked.

We are very lucky; in the spring of 2010 she developed mono – her platelets did not drop very much and she recovered quickly.  Kirstie does not feel ill from ITP – it really only affects her playing contacts sports which are a big part of her life.  We naturally hope that her condition will improve and that her health returns to normal and she can get back to doing all of the things she really enjoys.

Filed Under: G / S United States Tagged With: , ,

Gone After Gardasil: Megan, New Mexico

August 15, 2011 By 4 Comments

Megan Hild – New Mexico

20 years old

Megan loved children, especially her nieces and nephew. Her family was her life and she never missed an opportunity to spend time with them. She especially liked to be at home just hanging out with family and friends.

Megan was a student at CNM working towards her Associates degree in radiology and general studies. Megan’s beautiful smile will be greatly missed by all who knew and loved her.

She was a very healthy and happy young lady, and loved going to college.

Here is an excerpt from an email her mother sent:

“On her death certificate, it will read – cause of death unknown. She’s my daughter and I loved her!!!! I will never see her graduate college. I will never see her wear a wedding dress and hold her babies in her arms.

We have a sixteen year old son who says, ‘Life does not matter; what you do in life does not matter.’ This is how this vaccine has changed our family’s life forever!

Megan was 20, happy and healthy. She was attending college with a promise of marriage after graduation. She held her life in the palm of her hand. Now, all this family has is a certificate with an unexplained cause of death on it.

Something that was to protect her health may have taken her life. There needs to be an investigation right away–before more young women are injured, or worse, die. Please do not allow another family to have to live the life we have been made to live.”

Megan’s symptoms included rash, severe stomach pains, severe headaches/migraines, extreme fatigue and vaginal bleeding.

email: snowflakes18454@yahoo.com

Filed Under: G / S United States, Vaccine Victims Memorial

Deux Documentaristes Hawaiians Interviewent Line Morin

August 6, 2011 By 2 Comments

Annabelle1August 5, 2011

Linda Morin made the front page of a Quebec tabloid during her interview with Ryan Richardson for the ‘One More Girl’ film.

Linda’s daughter died post-Gardasil vaccination.  Linda did not know that her daughter received the vaccine at school.  Parents do not have to be informed.

This newspaper is free in Quebec and is delivered to every household, supermarkets, hospitals, the library, medical clinics – 150,000 copies delivered today!

http://virtuel.lechodelaval.canoe.ca/doc/hebdo_l-echo-de-laval/ed_ela_0804_11/2011080202/#0

 

 

 

Filed Under: Canada, G / S Canada, ONE MORE GIRL Documentary, Vaccines and the Media Tagged With: , , , ,

Gardasil Injured Joelle from Australia

July 31, 2011 By 6 Comments

Story as told by Susan, Joelle’s mum:

Joelle became chronically unwell in December 2007. She was 16 years old. I did not initially link the Gardasil vaccination to my daughter’s current illness until after the 3rd shot. It briefly crossed my mind after she suffered a short illness following her 2nd shot of Gardasil but I dismissed the thought as the illness developed a few weeks post vaccination. My daughter was very healthy and active prior to her Gardasil vaccinations and she had no pre-existing medical conditions. She also had never had an adverse reaction to any previous immunisation.

Her 1st Gardasil vaccination was given on 11th May 2007 and I recall her suffering a mild fever post vaccination (as we did consult a handout that detailed common side effects). Her 2nd vaccination was on 12th June 2007 and I don’t recall any immediate adverse side effects, however I had taken her to our Medical Centre early in July because she had been complaining of fatigue for several weeks. The doctor ordered blood tests and did comment that her iron levels were a bit low and recommended taking an iron supplement. One week later in mid July 2007 however, she became quite unwell. The symptoms of the illness involved high fever, severe headache, neck stiffness, extreme aversion to light, hallucinations, vomiting, petechial rash on forehead. She was taken to an After Hours GP who was initially concerned that it was meningitis, however blood tests were negative. This illness resolved satisfactorily after 10 days and she continued on her iron supplement.

My daughter received her 3rd vaccination on 29th October 2007 and again I don’t recall any immediate side effects but by mid November my daughter was again complaining of general malaise and fatigue again. She then developed the first episode of illness which started with flulike symptoms and progressed to a cyclical pattern of fevers/chills/sweats several times during a 24 hour period. This first episode of illness resolved around 9th December 2007 and she recovered. The second episode of illness was very severe and began on 22nd December 2007 and again started with malaise and flulike symptoms progressing to a continuous cycle of fevers/chills/sweats with no break between the cycles. She had severe abdominal and joint pain, sore throat, headache, vomiting, was incapacitated, continually bedridden and unable to attend to bathing or eating for 2 weeks. She also suffered from hallucinations, missed a menstrual period and lost 6 kilograms in weight during this illness. She had wildly fluctuating temperatures that would climb over 40 degrees C then drop to 35 degrees C within the space of a few hours. She had unusual blanching to her hands/forearms and feet/lower legs. These extremities were so pale you could not even see the creases on her palms.

We made several visits to our Medical Centre during January 2008 as she continued to suffer daily fevers/chills/sweats. Blood tests revealed that she was very anaemic and her inflammatory markers (CRP/ESR) were very high. She was finally referred to an infection specialist and haematologist who admitted her to hospital for 5 days late in January 2008 as I was concerned because she was still unwell and would soon have to return to school after the summer break. She underwent Xrays, CT scans, cardiac scan, PET scans, bone marrow biopsies, blood tests, etc, over many months. These tests revealed no abnormalities. She was also referred to a Rheumatologist who stated that her illness appeared to resemble an auto-immune disease called Adult Onset Still’s Disease. She is also suffering from anaemia of chronic disease.

My daughter was unable to attend school for the first term when it recommenced in February 2008, and could only cope with two hours a day when she did return to school in April 2008 as she was still very fatigued and suffering from intermittent fevers/chills/sweats most days along with headaches, joint pain and Still’s rash. She also had to quit her part-time job at Subway. In May 2008 the Rheumatologist commenced my daughter on the medication Prednisone and then added Methotrexate, Naprosyn, Folic Acid, Stemetil. The medication did improve her condition marginally during the latter part of 2008 but she often suffered relapses that would flatten her for weeks at a time. My daughter did complete Grade 12 even though she was absent for much of the year!

Her illness was more stable during 2009 with shorter episodes of breakthrough fevers/chills/sweats. Despite these debilitating symptoms she enrolled to study Pharmacy at University with the full support of the University’s Disability Services Program. She still suffered vague flulike symptoms, joint pain and headaches most days, however severe fatigue is her main nemesis that requires daytime naps and 12 hours sleep at night in order to cope. Her two-monthly blood tests still showed marked anaemia and continually elevated CRP/ESR levels. In late 2009 she again complained of extreme feelings of weakness and lethargy, suffering bouts of flulike symptoms, joint pain, headaches and nausea that persist for weeks at a time. These symptoms continue unabated till mid 2010.

In June 2010 doctor adds new medication Leflunomide. New drug appears to control symptoms initially and a five month period of some respite follows. Her anaemia is improving and her inflammatory markers drop to a normal level for the first time since 2007. Joelle starts a part-time job at Boost Juice for a few hours a week and begins exercising, and is coping with full-time 2nd year University studies. However, eventually side effects from Leflunomide increase with time resulting in marked hair loss, continual nausea/retching and weight loss. Joelle contracts a minor respiratory infection in October 2010 after which her health declines rapidly and her Still’s Disease reactivates resulting in 3 months of illness whereby she is incapacitated once again and unable to work or exercise, and fortunately for her University is in recess. Despite several attempts over the past three years to wean Joelle off Prednisone, this is unachievable.

In February 2011, Leflunomide is ceased and replaced with an injectable drug called Enbrel. She begins 3rd Year of University and recommences her part-time job. Her endurance and tolerance to activity is improving once again. The nausea from Leflunomide is diminishing and her appetite has returned. Her Still’s rash is still present and she suffers from joint swelling, headaches and nausea intermittently. Chronic fatigue forces her to have daytime naps when able and to retreat to bed by 8pm at night. She often states that she can’t remember “what it feels like to be well”.

Thanks for reading our story.

Filed Under: G / S Australia, Gardasil / Silgard Injuries Tagged With: , , , , ,

Father of Gardasil Injured Girl Speaks

July 31, 2011 By Leave a Comment

[Note from SaneVax:  When one thinks of vaccine injuries, it is not often those thoughts extend beyond the person who was actually given the vaccine. Unfortunately, the families of those injured are also on the list of victims as their lives are also affected by whatever ‘new medical conditions’ appear in their children.

Please take a few minutes to read one father’s story about the events in his life after his daughter was given Gardasil:

It is difficult to express the feelings I have as a father about our daughter’s struggle with adverse reactions to Gardasil.

Truthfully, I am angry. I am angry that a trusted physician of years who is very familiar with Brittney’s health issues involving immune system difficulties and allergies would so very easily strongly recommend the HPV Vaccine shot to Brittney, and do so with little or no mention of the possibility of adverse reactions. To me, it seems this physician took it upon themselves to presume she was at risk to come into contact with this HPV virus, which we have since found is most likely to be contracted primarily through sexual activity. Contrary to this “assumption”, there are many young women who still save the gift of sex for a marital relationship, and I know Brittney is among them. This anger is fed further by the fact this same physician has refused to acknowledge the diagnosis of a reaction to Gardasil, insisting upon the hypothesis that these symptoms were brought about by a deep seated psychosomatic cause or “something” else.

I am also angry that in many ways many in the medical community which we dealt with have taken such a cavalier attitude toward Brittney’s health issues. As is the case, this reaction does not fall within the realm of normalcy, which seemed to be more than enough reason for many “healers” to not even attempt to deal with. I might add that this experience with physicians has been echoed over and over again among those having adverse reactions to Gardisil. I find it amazing that it is usually the last area of investigation, rather then the first, even though symptoms appear shortly after injections.

I do not expect perfection in physicians, as there is much we do not understand about the human body. I do, however, expect compassion for patients who are suffering and a passion for healing that does not easily give up. We’re not talking about the family car here!

I was once recited the statement that a “physician should do no harm”. I think the message being sent was that a physician should not deal with what they do not understand and possibly cause more harm than good. I fear the way several physicians dealt with Brittney could more accurately be stated as “do no good”. Certainly the creators of Gardasil felt it worth the risk, and I might also add, the financial investment, to journey into areas they did not understand completely. Their intent was to heal, and I know from personal experience with our daughter that they also very much risked doing “harm”. Obviously, they felt it was “worth it”. If all physicians operated with this approach of “do no harm”, there would be many curable and treatable conditions of today that would have never been discovered. I guess we should forget radiation and chemo treatments of cancer patients, as these usually do harm also. Need surgery? Forget it…”do no harm”.

Here’s what I have seen as a father. All fathers want to see their daughters find their way in this life. Gardasil has tried to rob me of that joy. I was looking forward to watching Brittney find her career path and develop some strong lasting relationships. This is what occurs in the young adult years and often sets the tone for a lifetime. I was looking forward to seeing her experiencing the joy of blossoming into her own person and standing on her own. There is not much of that going on these says, as much of the time Brittney struggles just to walk and to deal with pain. Relationships are pretty much limited to phone calls and a sparse few quick visits. Basically, other young adults do not seem to want to mess with someone who at the moment is not fun or cannot offer them some sort of contribution.

I think there is nothing more painful to a father or mother than to know their child is suffering. However, please understand that this suffering goes far beyond the physical, which is significant. This suffering also reaches into her spirit and mine as well. It breaks our hearts. There is the frustration of many set-backs, and the constant sense that there are those medical professionals “out there” who refuse to acknowledge this illness as even worthy of their time. Frustration has become a way of life for now.

Brittney is blessed in many ways. She is not as bad off as some of the others who have experienced this. We do hold out hope and have faith in our God that she will one day beat this. Her mother is a treasure beyond compare in never ceasing to be selfless in her love and diligent care. I honestly am finding that I am not equipped on an emotional basis to give the kind of care and understanding my dear wife does. I am lost in this. She is one of those angels who walk around the planet masquerading as humans. Even as I write this, I cannot help but feel sad for those young women who may experience adverse reactions to Gardasil of this nature and not have the kind of support Brittney has.

As in any serious illness, it is not only the child who suffers. The whole family suffers. Life is not the same. And….in this case, it simply was not necessary and could have been avoided with truthfulness and caring counsel.

Surprisingly, I am not advocating the total denial of Gardasil to perhaps countless millions who “may” benefit from this. I realize there are countless many more young women who do not react to Gardasil as Brittney and others have. I am, however, strongly advocating that the TRUTH of this vaccine’s effectiveness and application to cervical cancer causes be clearly and openly identified. I feel that I have seen “enough” suffering and read about enough suffering in others to warrant that this vaccine be halted until more is known. As the good doctor might say…”do no harm”.

I fear very much that many other fathers who have “little girls” will experience what we have experienced due to greed on the part of the pharmaceutical company responsible and also on the part of doctors who may benefit from pushing their products. I have read many opinions of medical people that this drug was not nearly adequately tested and to the same extent as other drugs before being released to the general public. I am certainly opposed to making this a mandatory vaccine for school aged young women, as I have seen what can go wrong. I would like for physicians to be truthful in their presentation of this option.

I think much is being learned about possible triggers which may set-off adverse reactions to Gardasil. These should be clearly identified and paid heed to before another young woman has to suffer needlessly.

(Authored by Rick Fiste, father of a Gardasil injured daughter)

 

Filed Under: G / S United States Tagged With: , , , , ,

Naomi from Australia

July 31, 2011 By 2 Comments

Naomi, Australia: Prior to Gardasil, Naomi was a happy, healthy 25 year old completing her Bachelor’s degree while working full-time in administration. She was about to embark on a Post Graduate Degree in Journalism. Despite being kept busy by work and study, she found the time to go out with friends and dance at their favorite club almost every weekend.

During 2008 and 2009, Naomi’s health mysteriously began to deteriorate into a myriad of inexplicable symptoms including dizziness, nausea, joint pain, a collapsing knee, loss of balance, chronic fatigue and weakness.

Even though she visited a multitude of health professionals, including both general practitioners and specialists, who performed a broad range of tests; no one was able to say what was wrong with her.

Tests confirmed an autoimmune reaction and an MRI showed some demyelination in Naomi’s brain similar to that experienced by MS patients. However, nothing was definitive. She was given pain killers and steroids, but no real explanation.

 

Just prior to Christmas in 2009, Naomi by chance read an article in the newspaper about a possible link between Gardasil and multiple sclerosis.

She collected her medical file and created a timeline. It showed that her symptoms had begun within weeks of receiving her first vaccination. The onset of the worst symptoms coincided with the receipt of her last vaccination. Immediately, she began to research on the internet. What she discovered was a plethora of other girls with stories just like hers.

Fourteen months after her last vaccination, Naomi is still on steroids. She was forced to discontinue her post graduate studies. She is unable to work full time and sometimes unable to work at all. Naomi still experiences daily symptoms including chronic fatigue and some neurological difficulties.

Despite maintaining a brave face throughout the Gardasil ordeal, Naomi feels like a shadow of who she once was or, could have been.

Naomi created this video, based on her experiences. She would like anyone who is considering an HPV vaccine to watch her video first. You can access it through the following link:

Written by Norma Erickson, Vaccines Examiner

 

 

Filed Under: G / S Australia

Raquel from Spain

July 31, 2011 By 3 Comments

spainRaquel Wonders if She Will Ever Be the Same

By:  Norma Erickson, Vaccines Examiner

Raquel was the typical girl next door. She enjoyed spending time with her family and playing with the other children in the neighborhood. Raquel’s biggest concern was studying to get good grades in school. She loved to travel and enjoy the great outdoors.

Raquel was 14 when she got her first shot of Gardasil in November of 2008. In February of 2009, she received her second shot. Five minutes later, she was dizzy; ten minutes later, she was experiencing tachycardia (rapid heart beat) and seizures. A few hours later, she is in intensive care unable to breathe. Raquel is in a coma.

For the next two months, Raquel remains in the intensive care unit battling between coma and convulsions. When she is released from intensive care to a regular ward, Raquel can no longer walk.

During her stay in the hospital, doctors rule out the possibility of encephalitis, viral infection, and bacterial inflammation. Left scratching their heads as to a cause, they say it is a pseudocrisis and release her without further treatment. Raquel had to be transported home in an ambulance because she could not yet sit in a wheelchair, although one was provided for her. She and her family were left trying to deal with convulsions and paralysis on their own.

Raquel’s parents take her to a private neurologist who determines she suffers from demyelination, a loss of the myelin that insulates her nerve endings. She is given a prescription for anticonvulsive treatment and a myelin rebuilder.

In May, she is released to rehabilitation. By the end of July, she can finally walk again.

In October, her doctor decides to gradually decrease her medications because she has been seizure free for several months. In November, the nightmare begins again. Raquel is once more confined to a wheelchair and has to try to fight her way back to a somewhat normal existance.

Raquel has missed a lot in the last year:

  • She remembers very little about her two month stay in the Intensive Care Unit.
  • She missed the touch of her parents for months, while they could only view her though a window and communicate via blackboard.
  • She could not wish her brother “Happy Birthday,” she was intubated that day.
  • She could not celebrate Easter with her family, she was in the hospital.
  • She could not celebrate her 15th birthday with family and friends, she was in the hospital.
  • She missed five months of school.
  • She can no longer enjoy many of her favorite foods, Raquel is on a special diet.
  • She misses participating in normal everyday activities with her friends.

 

From the day she received her second shot of Gardasil, her life has been totally changed. She spent a lot of time wondering if she would survive at all.

Instead of looking forward to growing up and making plans for her future, Raquel has but one thought on her mind, “I do not want one more girl to suffer what I have suffered!”

Filed Under: G / S Spain

Ornella from Avila

July 31, 2011 By Leave a Comment

spainORNELLA DIAZ

Age when she was vaccinated: 13 years old.

City- Country Avila- Spain

Diagnosis: Incapacitated

Symptoms: Since Ornella got the vaccine she is unable to do physical education.  Her medical tests show a low level of potassium – she has tremors, she gets sick, she has headaches and has experienced loss of sight and dizziness.  After being admitted to the emergency unit of the hospital she was discharged after 7 hours resting. She has been advised to see a psychologist but her mother says her daughter is not a crazy girl.  Her condition worsens almost always when she has her menstrual cycle.

Dates of vaccination:  9/22/08 first shot and received the second shot on 11/24/2008. She did not receive the third shot.

She was vaccinated with Gardasil. Batch:  First shot NG432200; Second shot N643220

Not recovered:  She still has crisis.

HPV vaccine has changed our lives.

It is terrible we are always worried when she starts shaking and has tachipnea (rapid shallow breathing) because we have to go to hospital. I believe that they should investigate a little since there are children who have common symptoms. I hope they take care of them before it is too late.

Filed Under: G / S Spain

Raquel from Valencia

July 31, 2011 By Leave a Comment

spainRAQUEL DOMINGUEZ

Town- city- country:  Alboraya 46120. Valencia. Spain.

Diagnosis Hospital Clinico de Valencia: initial paroxistic movements and pseudocrisis. Raquel was unable to walk. Neurologist who is treating the girl at the moment has diagnosed: Demyelinitation, left hemiparesis and ataxia as consequence of inflammatory process in the trunk or cerebellum due to an auto-immune process. Pseudocrisis. Incapacitated

Symptoms: Seizures, loss of consciousness, headaches, tachycardia, disconnection towards environment, loss of strength (mainly left side), blurred eyesight after the crisis, dizziness, joint pain (mainly neck),vertigos, weakness in the legs, irregularities in the menstruation (she always had regular periods, now this is not the case), loss of feeling in hands and knees, urticaries (skin condition), incapacity to walk (after the crisis), incapacity to take physical exercise.

Visits to Emergency Hospital Doors 5/16/2009,11/7/2009,11/26/09

Hospitals where she has been admitted Hospital Clínico Universitario de Valencia , Casa Salud Hospital (Valencia)

Hospitalizations Hospital Clínico Universitario de Valencia: From 2/4/2009 to 5/6/2009 (she was practically two months in the Paediatric Intensive Care Unit). Hospital Casa Salud (Valencia) From 5/6/2009 to 5/13/2009

Dates of vaccination 1st Shot: 11/18/08;  2nd shot 2/4/09

Vaccinated with Gardasil. Batch 1st Shot: NH45150 2nd Shot NH 52670

Duration of the disease From the 2/4/2009 to today 2nd of February 2010.

Evolution of the Disease Five minutes after receiving the second shot she becomes dizzy,  after ten minutes she begins with tachycardia, temperature 38´2ºC and seizures, so the doctor decides to inject a valium and call an emergency ambulance. She is removed to hospital where she stays at the emergency doors from 14:00 to 18:00 (they make a TAC and a lumbar puncture) and finally she is admitted to the Paediatric Intensive Care Unit as they cannot stop the seizures despite the fact that she was given valium. That night she was intubated (attached to a breathing machine) because she had an apnea – breathing problems and in a coma. The second day the doctors tell us that perhaps it is an Encephalitis because the lumbar puncture was positive, so they prescribe her antibiotics. After they repeat the test and say it is not Encephalitis. Our daughter stayed in the Paediatric Intensive Care Unit practically two months. She was intubated on four occasions since she did not respond to anticomicial treatment (an agent that prevents or relieves convulsions). Two days after our daughter was in hospital another girl (the other Valencian girl) was admitted to hospital for the same symptoms as our daughter: seizures, loss of consciousness. She also stayed in the Paediatric Intensive Care Unit.

Doctors give us different diagnoses, first they told us that it was a virus, after that the inflammation had to be in the trunk, finally they told us that it was an immunological problem and for that reason they give her corticoids (a steroid) and immunoglobulins.

Drastically from the 15th of March the specialists change their diagnosis to Pseudocrisis. When Raquel is on Ward we realise that she can not walk. Doctors decide to withdraw anticomicial treatment, and from that moment on she begins having seizures practically every day. She remains in Ward another month and she was discharged from hospital without treatment and with ataxy – loss of the ability to coordinate muscular movement (she was in a wheelchair as she could not walk at all). After we take her to another hospital, a private neurologist states that she had demyelination* due to an inflammatory process on the trunk or encephalus, ataxy and left hemiparesis (weakness on one side of the body). *Dymelination is a loss of myelin, the substance in the white matter that insulates nerve endings.   He gives her anticonvulsive treatment and a rebuilder of the myeline. After leaving that hospital at the end of May she begins a rehabilitation programme (she stayed in a wheelchair for three months). At the end of July she begins to walk. In October 2009 the neurologist prescribes to decrease the medication little by little. In November (after six months without seizures) she has another crisis and after that she is unable to walk. On the 27th November she has another crisis, so the neurologist increases the medication. Until 4th January 2010 she cannot walk. Now she goes practically every day to the swimming pool as requested by the rehabilitator.

Not Recovered

From the day in which she received the vaccine, her life has changed totally. She does not remember practically anything that happened in two months while she was in the Intensive Paediatric Care Unit. When she was there she sometimes felt she was going to die. When they intubated (breathing machine) her she suffered a lot. She could only see her parents for a little while a day. When her family came to see her, she saw them through a window, she communicated with them with a blackboard. When we thought she was recovered because they told us she was not going to have more seizures and she was sent to an ordinary ward, there she became ill again and she was sent back to the Intensive Paediatric Ward. She could not see her friends until she was better.

The first time she tried to walk, we realised she could not. She could not congratulate her brother on his birthday as she was intubated, or speak to congratulate her grandmother or her cousin on their birthdays. She has a very bad memory and cannot remember when she was in the Paediatric Intensive Care Unit – (she cannot remember many things that happened to her during her stay in the Paediatric Intensive Care Unit). When she was on the Ward she was happy because she was with her parents but there was always a nurse with us. She was in hospital at Fallas (Valencian festivity) at Easter and even on her birthday. We made a party to celebrate her birthday in hospital. After leaving that hospital she went to another, luckily she was there only one week. When she arrived at home she was in a wheelchair for three months, it was terrible, she could not go to school for five months, she could not go out with her friends, she could not do the things other girls do at her age for six months. She started taking medicines and a special diet.

In September she was happy because she started school, she had very good marks but in November she was ill again, when she saw she was in hospital again she felt bad. More when she realised she could not walk and she had to use a wheelchair again. She and all the family felt they were repeating the nightmare no school, no friends, no walking. Often she wonders herself why this has happened to her. She has grown very much, no longer she worries about trivialities.

All the family are living together to care for her, but it is very hard to see how your daughter is suffering so much and you cannot do anything to help her, besides we feel that Health Authorities do not care about what is happening to our daughter and the other ones. Really we feel disappointed and helpless.

Our daughter says she does not want another girl to suffer what she has suffered, that sentence is always in our mind.

Filed Under: G / S Spain
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